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  • For measuring information needs we did not find a suitable standardised questionnaire and developed an ad hoc scale with 15 illness, therapy or psychosocial care related items covering main aspects: diagnosis, chance of recovery, course of the disease, treatment, side effects, other therapy options, course of the therapy, follow-up care, genetic risk, prevention, rehabilitation, psychosocial support, self-help groups, participation in studies, and a second opinion.
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